All Around Support: Ninfa’s Story

In 2015, Ninfa was living in Naples, receiving ongoing neurological care for her epilepsy. However, she was concerned about her upcoming move to Miami and how she would manage the transition. She wondered how she would continue to receive care and if there were any resources in Miami that could assist her.

Fortunately, her neurologist referred her to the Miami office of Epilepsy Alliance Florida. With the assistance of Epilepsy Alliance Florida and its staff, Ninfa was able to receive the necessary ongoing neurological care and medication management. Over the past five years, Epilepsy Alliance Florida has played a crucial role in reducing Ninfa’s seizures and improving her quality of life.

Ninfa expressed gratitude not only for the medical attention she received but also for the support provided by the staff across various departments within the organization. She described Epilepsy Alliance Florida as “angels” who were sent to her and have been by her side throughout her journey.

Contrary to popular belief, epilepsy is not as rare as many think. It is more than twice as common in the U.S. as cerebral palsy, muscular dystrophy, multiple sclerosis, and cystic fibrosis combined. Epilepsy Alliance Florida is dedicated to supporting the over 400,000 individuals affected by epilepsy and addressing the range of challenges that arise from seizures.

Ninfa has participated in support groups, events, and utilized the resources offered by Epilepsy Alliance Florida. These experiences have helped her gain a better understanding of her own epilepsy and have shown her that she is not alone in her struggles. Support is readily available.