Refusing to let Epilepsy Stop Me: Lisa’s Story

When I initially reached out to Epilepsy Alliance Florida, I was in a situation where I had no insurance and was unsure of how I would manage to pay for my medication. Fortunately, they provided me with the assistance I needed. I conducted research online to explore any available programs that could offer support. As of now, I haven’t participated in any activities or programs.

The most significant and helpful change in my life has been the ability to visit my doctor regularly and obtain my medication. Without my medication, I would be unable to drive, risking the loss of my job, my home, and potentially even my children, considering I am a single mother. Looking ahead, I am faced with various challenges as I have noticed an increase in auras, which could potentially be the onset of diabetes. Distinguishing between the symptoms is something I’m currently working on.

I have been experiencing seizures since the age of five. I have made a conscious decision to not let my epilepsy dictate my life or hinder me from fully living. I spent six months in the hospital while doctors were attempting to diagnose my condition. For the most part, I have my seizures under control. I strive to manage stress levels and ensure I get sufficient sleep. Despite my condition, I am an avid runner, and it’s during my runs that I occasionally experience seizures. Remarkably, I have completed eight marathons and have seen an improvement in my performance over time. I closely listen to my body, and when I notice my right arm trembling and my right shoulder rising, I understand it’s time to slow down. Once I slow down and begin walking, if my legs start giving out, I simply allow the seizure to run its course, then get back up and resume running.

I am incredibly grateful to have a doctor who is aware of my condition and actively encourages me not only to run but also to participate in races. As a precaution, I always carry backup seizure medication with me. On average, I run approximately 20-30 miles per week, and during marathon training, I cover around 100 miles per month. During races, I have the support of wonderful friends who eagerly await me at the finish line. They ensure that paramedics are kept at bay and provide me with water. Once the seizure subsides, we celebrate together. If my friends finish the race before me, they will even come back and run alongside me to complete the race. To ensure everyone is informed, I communicate with race officials in advance regarding what to expect at the end.

One of my major aspirations is to participate in an ultra marathon, most likely a 50k race, which spans approximately 30 miles.

-Lisa Weatherford